Episode 37

The Caregiver Who Sparked a Movement

with Andrea Wilson Woods
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The Caregiver Who Sparked a Movement

How do you turn unbearable loss into lasting impact?

Andrea Wilson Woods, patient advocate, speaker, and founder of Blue Fairy: The Adrienne Wilson Liver Cancer Association, shares the powerful legacy of her sister Adrienne’s book, I’d Rather Be Dead Than Deaf: A Young Woman’s Journey with Liver Cancer. What began as one young woman’s journal became a voice for thousands facing hepatocellular carcinoma (HCC)—one of the world’s deadliest yet most preventable cancers.

As Adrienne’s guardian and caregiver, Andrea faced a system unprepared to support young adults with cancer. Out of that heartbreak came Blue Fairy, now a national nonprofit providing education, advocacy, and emotional support for HCC patients and their families. Andrea explains how today’s targeted and immunotherapies are changing outcomes, why patient stories matter, and how caregivers can stay organized and hopeful through chaos.

This episode is a tribute to Adrienne’s courage and to every family walking the same path. It’s a reminder that even in the hardest moments, advocacy, love, and education can create real change—and that hope always has another chapter.

Highlights:

00:42 – The story behind I’d Rather Be Dead Than Deaf
Hear how Adrienne Wilson’s journals became a powerful book that gives a voice to young adults facing liver cancer.

02:15 – Why Andrea founded Blue Fairy
Learn how one sister’s loss inspired a national nonprofit that now educates, advocates, and supports HCC patients and families.

04:12 – Understanding hepatocellular carcinoma (HCC)
Discover what makes HCC one of the deadliest cancers—and why prevention and early screening are key.

06:45 – Today’s breakthroughs in liver cancer treatment
Andrea explains how targeted therapies and immunotherapies are improving both survival and quality of life.

09:03 – A caregiver’s turning point
Find out how Andrea went from feeling powerless to becoming her sister’s strongest advocate and a voice for others.

11:20 – The Blue Fairy approach to advocacy
See how education, storytelling, and community support drive real change in awareness and policy.

13:47 – Caregiver tools that make a difference
Learn Andrea’s practical “binder system” for keeping records, test results, and notes organized through treatment.

16:02 – Palliative care vs. hospice—knowing the difference
Hear Andrea’s clear explanation of these two terms and how each can improve quality of life at different stages.

18:25 – Why stories save lives
Understand how personal stories like Adrienne’s can move doctors, influence research, and inspire others to seek help sooner.

21:05 – Finding hope after loss
Andrea shares what healing looks like after grief—and how Blue Fairy continues Adrienne’s legacy through education and compassion.

Mentioned Resources:

CanCare- www.cancare.org

Book – www.cancare.org/hopebook

Blue Farey - https://www.bluefaery.org/

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About the Guest:

Andrea Wilson Woods is the founder and president of Blue Faery: The Adrienne Wilson Liver Cancer Association, a nonprofit she created in memory of her sister Adrienne. A cancer caregiver, patient advocate, speaker, podcaster, and award-winning author, Andrea has turned personal loss into a mission of hope, empowering families facing liver cancer through awareness, education, and support.

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Ep 41

Finding Holiday Joy with Cancer

with Darcie Wells
What happens when the holidays arrive while you’re still healing from cancer? In this solo reflection, host Darcie Wells, President and CEO of CanCare, speaks directly to cancer survivors and caregivers who feel out of sync with the “most wonderful time of the year.” She names the quiet realities of this season after cancer, including gratitude pressure, FOMO around old traditions, scanxiety before medical tests, caregiver exhaustion and the sharp ache of missing someone who is no longer here. Darcie shares the words of survivors who describe feeling like life is happening in two worlds at once, and reminds you that your feelings are valid, even when they are messy. She offers simple tools for this season: redefine what a “good” holiday looks like, set kind but clear boundaries, create new or gentler traditions, and honor both grief and gratitude without pretending. She also suggests ways to remember loved ones with small memorial rituals while still allowing moments of peace and joy to emerge. Above all, Darcie invites you to see your presence as the greatest gift. Your holiday does not have to be perfect. It just has to be yours, and you do not have to walk through it alone. Tips For Managing The Holiday: The holidays can be beautiful, but after cancer, they can also feel overwhelming or emotionally complicated. If this season feels different than it used to, you are not alone. These tips can help you move through the holidays with more peace and self-compassion. 1. Redefine What “Holiday Success” Means Meaningful matters more than perfect. Smaller gatherings can feel deeply fulfilling. Quality time is more important than the number of events. Rest is a gift, not a weakness. Prioritize what matters and let the rest go. 2. Set Boundaries and Communicate Your Needs Say yes only to what feels manageable. It is okay to decline invitations or leave early. Let loved ones know how they can support you. Limit conversations that may feel triggering. Prepare simple responses such as “I am focusing on enjoying today.” Redirect intrusive questions. Ask a trusted person to help shift conversations. 3. Create Traditions That Fit Where You Are Now Choose traditions that bring genuine joy. Include gratitude practices that feel authentic. Build in breaks and recovery time. 4. Honor Your Emotions It is okay to feel sad, anxious, or overwhelmed. Grief and joy can coexist. Reach out for support when emotions feel heavy. 5. Care for Your Health Stay consistent with medication. Hydrate, rest, and care for your body. Honor your physical limits. 6. If You Are Missing Someone Create rituals that honor their memory. Light a candle, share their stories, or include something they loved. Allow space for grief and joy. A Gentle Reminder Your holidays do not have to look the way they used to. Cancer changes you, and it is natural for your celebrations to change to o. Make the focus presence, peace, and moments of connection. Your holiday season does not have to be perfect. It just has to be yours. Mentioned Resources: CanCare- www.cancare.org Book – www.cancare.org/hopebook
Ep 40


Hope for Cancer Caregivers

with ‍Rose Gerber
What helps a caregiver stay steady when cancer changes everything? Caregivers carry so much of the emotional weight of cancer, yet their needs are often overlooked. In this powerful episode, Darcie Wells joins the Community Oncology Alliance with host Rose Gerber for a conversation that shines a light on the unseen side of caregiving and the hope that grows when no one has to carry the burden alone. Rose, a long-term breast cancer survivor, and Darcie talk about why caregivers deserve as much care, compassion, and emotional support as the person going through treatment. They discuss the role of trained peer volunteers and how emotional support changes the caregiving experience for both the patient and the family. Darcie reflects on caring for her mother, stepfather, and grandmother as each faced cancer, all from a distance. She remembers wanting to help but not knowing where to turn, and later realizing how much a companion with lived experience would have eased the fear and isolation. Her message is clear. Your role matters. Caring for yourself strengthens the care you give. Hope grows when someone walks beside you with understanding. Highlights: • Learn why caregivers often hide their stress and how that impacts the support system. • Hear how CanCare trains volunteers to provide safe, compassionate emotional space. • Understand why relationship-based matching helps caregivers feel seen and understood. • Discover simple communication habits that help caregivers support loved ones. • Gain insight into long-term caregiving needs and why support must adapt over time. Mentioned Resources: CanCare- www.cancare.org Book – www.cancare.org/hopebook COA - communityoncology.org About the Guest: Rose Gerber is a long-term breast cancer survivor and host of the Community Oncology Alliance podcast. Diagnosed while raising young children, Rose’s journey through treatment shaped her calling to ensure that others facing cancer are supported, informed, and heard. Today, she leads patient advocacy and education for the Community Oncology Alliance, managing the COA Patient Advocacy Network and working alongside oncologists, nurses, survivors, and policymakers across the country. Her work has taken her to Washington, D.C., national media platforms, and community cancer centers nationwide, empowering patients and protecting access to community-based cancer care.
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