Episode 37

The Caregiver Who Sparked a Movement

with Andrea Wilson Woods
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The Caregiver Who Sparked a Movement

How do you turn unbearable loss into lasting impact?

Andrea Wilson Woods, patient advocate, speaker, and founder of Blue Fairy: The Adrienne Wilson Liver Cancer Association, shares the powerful legacy of her sister Adrienne’s book, I’d Rather Be Dead Than Deaf: A Young Woman’s Journey with Liver Cancer. What began as one young woman’s journal became a voice for thousands facing hepatocellular carcinoma (HCC)—one of the world’s deadliest yet most preventable cancers.

As Adrienne’s guardian and caregiver, Andrea faced a system unprepared to support young adults with cancer. Out of that heartbreak came Blue Fairy, now a national nonprofit providing education, advocacy, and emotional support for HCC patients and their families. Andrea explains how today’s targeted and immunotherapies are changing outcomes, why patient stories matter, and how caregivers can stay organized and hopeful through chaos.

This episode is a tribute to Adrienne’s courage and to every family walking the same path. It’s a reminder that even in the hardest moments, advocacy, love, and education can create real change—and that hope always has another chapter.

Highlights:

00:42 – The story behind I’d Rather Be Dead Than Deaf
Hear how Adrienne Wilson’s journals became a powerful book that gives a voice to young adults facing liver cancer.

02:15 – Why Andrea founded Blue Fairy
Learn how one sister’s loss inspired a national nonprofit that now educates, advocates, and supports HCC patients and families.

04:12 – Understanding hepatocellular carcinoma (HCC)
Discover what makes HCC one of the deadliest cancers—and why prevention and early screening are key.

06:45 – Today’s breakthroughs in liver cancer treatment
Andrea explains how targeted therapies and immunotherapies are improving both survival and quality of life.

09:03 – A caregiver’s turning point
Find out how Andrea went from feeling powerless to becoming her sister’s strongest advocate and a voice for others.

11:20 – The Blue Fairy approach to advocacy
See how education, storytelling, and community support drive real change in awareness and policy.

13:47 – Caregiver tools that make a difference
Learn Andrea’s practical “binder system” for keeping records, test results, and notes organized through treatment.

16:02 – Palliative care vs. hospice—knowing the difference
Hear Andrea’s clear explanation of these two terms and how each can improve quality of life at different stages.

18:25 – Why stories save lives
Understand how personal stories like Adrienne’s can move doctors, influence research, and inspire others to seek help sooner.

21:05 – Finding hope after loss
Andrea shares what healing looks like after grief—and how Blue Fairy continues Adrienne’s legacy through education and compassion.

Mentioned Resources:

CanCare- www.cancare.org

Book – www.cancare.org/hopebook

Blue Farey - https://www.bluefaery.org/

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About the Guest:

Andrea Wilson Woods is the founder and president of Blue Faery: The Adrienne Wilson Liver Cancer Association, a nonprofit she created in memory of her sister Adrienne. A cancer caregiver, patient advocate, speaker, podcaster, and award-winning author, Andrea has turned personal loss into a mission of hope, empowering families facing liver cancer through awareness, education, and support.

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Ep 55

One Diagnosis. 3,000 Women Helped.

with Lyndsay Levingston
How do you turn a life-changing cancer diagnosis into a mission that helps thousands of others? At 37 years old, Lindsay Levingston was building a successful career in television news in New York City when she discovered a lump that would change the course of her life. The diagnosis was stage 2B triple-negative breast cancer. What followed was a journey through treatment, difficult decisions, and unexpected challenges that ultimately led her to a greater sense of purpose. Today, Lindsay is a breast cancer survivor, advocate, speaker, and founder of Survive Her, a nonprofit dedicated to education, support, and empowerment for women affected by breast cancer. As Lindsay reflects on her diagnosis, she shares how faith, family, and community became her foundation. What began as a desire to tell her story during the pandemic grew into Survive Her, a nonprofit dedicated to breast health education, support, screening awareness, and survivorship. She discusses the growing number of young women facing breast cancer, the importance of knowing your family history, and why every survivor's story matters. This conversation is a powerful reminder that hope is medicine, support changes lives, and purpose can emerge from places we never expected. Lindsey's story offers encouragement for anyone facing cancer and a call to use your voice, your experience, and your compassion to help others along the way. Highlights: 1. Learn why knowing your family history can be a critical part of early cancer detection. 2. Discover how support systems can impact both treatment and recovery. 3. Understand the unique challenges younger adults face after a cancer diagnosis. 4. Hear how faith and mindset can help people navigate uncertainty and fear. 5. Learn how personal adversity can become the foundation for meaningful service and advocacy. Mentioned Resources: CanCare- www.cancare.org SurviveHER – https://www.imasurviveher.org/ ‍About the Guest: Lyndsay Levingston is a breast cancer survivor, nonprofit founder, and tireless advocate for women navigating their breast health journey. After her own diagnosis, Lyndsay turned lived experience into lasting impact, building SurviveHER into a vibrant sisterhood offering education, financial assistance, wellness resources, and access to life-saving screenings for uninsured and underinsured women. Since 2020, SurviveHER has supported more than 3,000 women and received national recognition, including acknowledgments from the United States Congress. Her work has been featured in ESSENCE, Oprah Daily, NBC News, and Yahoo!.
Ep 54

When Medicine Meets Compassion

with Susan Sabo-Wagner and Isabel Verastegui
What if one of the most powerful forms of cancer support comes from someone who has already walked the path before you? Darcie Wells sits down with Susan Sabo-Wagner, Vice President of Clinical Innovation at the American Oncology Network (AON) , and Isabel Verastegui, Manager of Care Coordination at AON, to explore how personal cancer experiences can shape the way patients are supported. Susan shares how a leukemia diagnosis at age 17 influenced her lifelong career in oncology nursing, while Isabel reflects on being diagnosed with triple-positive breast cancer at 41 while working in the oncology field herself. Both women open up about fear, uncertainty, treatment, and the support systems that helped them move forward. Their conversation highlights the importance of community oncology, the value of receiving care close to home, and the life-changing impact of peer support. Isabel explains how finding CanCare during treatment helped ease her anxiety and inspired her to become a volunteer for others facing cancer. Susan shares why emotional support is just as important as clinical care and how hope can help people navigate even the most difficult moments. This episode is a reminder that no one should face cancer alone. Whether you're in treatment, supporting a loved one, or navigating survivorship, there is strength in connection, comfort in shared experience, and always hope ahead. Highlights: • Why peer support often provides reassurance that even the best medical team cannot offer. • How community oncology is helping more people access high-quality cancer care closer to home. • Practical ways to manage fear, uncertainty, and anxiety after a cancer diagnosis. • What survivors learn about gratitude, perspective, and living one day at a time. • How healthcare organizations are expanding support beyond treatment to address emotional well-being. Mentioned Resources: CanCare- www.cancare.org AON - https://www.aoncology.com/ About the Guest: Susan Sabo-Wagner is an oncology certified nurse executive, Vice President of Clinical Innovation at the American Oncology Network, and a living testament to the resilience that defines the cancer journey. Diagnosed with leukemia as a teenager, Susan faced the fear and uncertainty that comes with a diagnosis that changes everything and came out the other side with a calling. She has spent her career transforming how cancer patients experience care across the country, bringing to that work something no credential can teach: the knowledge of what it truly means to sit in that chair. Isabel Verastegui is a Care Coordination Manager at the American Oncology Network, where she has spent 12 years working with cancer patients. In January 2022, at just 41 years old, Isabel was diagnosed with triple-positive breast cancer. Cancer did not stop her. It deepened her. Today she shows up not only for her patients at AON but as a CanCare volunteer for other women who find themselves navigating their own cancer journeys.
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